How can you connect data sets that are isolated for security and legal reasons?
Bitmark Data Trusts are independent, privacy-preserving marketplaces that aggregate previously siloed data into large-scale datasets; Bitmark acts as a clearinghouse enforcing the property rights around each transaction.
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First introduced to accelerate diabetes research with H2, Bitmark Data Trusts are independent, privacy-preserving marketplaces that aggregate previously siloed data into large-scale datasets without requiring rights holders to lose control over its storage; access to data is shared with full legal accountability as the public Bitmark blockchain acts as a clearinghouse enforcing the property rights around each transaction.
In the case of healthcare, the biggest issue preventing new advances today is access to data. Today, researchers and data aggregators lack:
- Access to diverse, global populations for clinical trials and other studies.
- A broader context of individuals that can be achieved by combining medical records and ongoing real world health data from health sensor / internet-of-things (IOT) devices such as wearables, smartphones, and connected machines.
- An economic structure that can stimulate mass participation in research while reducing the administrative legal costs of managing data.
Bitmark Data Trusts combat these problems by helping individuals pool their data together into global, large-scale datasets that are available to researchers through paid access. In the past, individuals resisted participating in research due to potential loss of privacy. On the other hand, researchers feared dealing with unclear ownership rights for data. Now through smartphones, however, individuals can easily aggregate and establish rights over their data, access new research opportunities, give informed consent digitally, and monitor the usage of their data without intermediaries.
Each trust functions like an independent marketplace that enables transactional privacy, trust, and security for all participants. Our technology restricts researchers to queries that preserve an individual’s privacy inside the data pool. In addition, individuals share their data with full legal accountability; the public Bitmark blockchain acts as a clearinghouse enforcing the property rights around each transaction.
Our goal is to advance healthcare through large scale ecosystems for data in which each stakeholder’s contribution is valued and protected through property rights and researchers can train new artificial intelligence (AI) and machine learning (ML) models.